Frequently Asked Questions
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CDH1 FAQs
What is CDH1?
CDH1 is a very rare genetic mutation that increases the risk of developing an extremely aggressive form of stomach cancer, hereditary diffuse gastric cancer or HDGC. The cancer is hard to detect and difficult to cure. For many people, the only option is gastrectomy, or complete removal of the stomach.
How Do You Eat With No Stomach?
After the entire stomach is removed, surgeons connect the small intestine with the esophagus. This means Stacy has to chew her food into a purée before swallowing, since that's how she'll break down all her food.
How Often Do You Eat?
Every two hours! Because she doesn't get hungry, Stacy sets a timer to remind her to eat. Without eating frequently, she would run out of energy very quickly. Along with a healthy variety of all the different food groups (and a good dose of nuts!), Stacy has to take calcium chews and watch out for her iron, vitamin D, and B12.
What Can I Do To Help?
Raising awareness for those with CDH1 and all types of cancer is very important. Non-profits like No Stomach For Cancer, Save Our Stomachs, and Debbie's Dream Foundation are great resources for patient education and research funding advocacy, and they can always use support. Proceeds from our CDH1 merch such as our tumbler and our snack bag, available on this website, will go directly to help No Stomach For Cancer.